Resources: "Let's Get Organized"

Beautiful cards for those facing cancer- online!: www.cancercardsonline.com
(609)707-7183

AirLifeLine:
would like to fly you for free to get well! If you qualify, AirLifeLine will fly you and a family member to a hospital, doctor, or treatment center at no cost. If you can demonstrate financial need and need to fly 1,000 miles or less from your home, call them toll free or email: 1-877-AIR-LIFE or www.airlifeline.org.

American Brain Tumor Association:
1-800-886-2282, www.abta.org.

American Cancer Society:
1-800-ACS-2345 (1-800-227-2345), www.cancer.org.

Blood & Marrow Transplant Newsletter:
1-888-597-7674, www.bmtnews.org. Support and resources for those facing a transplant.

Brave Kids:
is a nonprofit organization that serves the needs of children with chronic and life-threatening illnesses. Bravekids.org provides a comprehensive directory of health care specialists, relevant medical information from health care professionals, a community chat room, interactive contests and an online store for children with special health needs. Brave Kids also provides computers to seriously ill children who come from low-income families. See their website for lots of great information and connections: www.bravekids.org.

CancerCare:
Teleconferences, informational guides and materials, one-to-one counseling, and practical support- referrals to home and child care and financial assistance. Cancer Care Inc. National Office, 275 Seventh Avenue, New York, NY 10001. Call 1-800-813- HOPE (4673), email (info@) or visit www.cancercare.org.

Cancerkids.org:
"Cancer Kids" is a website dedicated to telling the world the stories of children fighting cancer. For your opportunity to share a story, contact them at the web site: www.cancerkids.org!

Cancervive, Inc.:
Cancervive is a Los Angeles based national non-profit organization, founded in 1985 by childhood cancer survivor Susan Nessim. Ms. Nessim had faced many obstacles to resuming her "life after cancer". Through Cancervive, she was determined to minimize the negative ramifications of surviving cancer for others who must face this disease. Contact them at 800-4-TOCURE, email at cancerviver@aol.com or write Cancervive Inc., 11636 Chayote Street, Los Angeles, CA 90049. www.cancervive.org.

Cancer Information & Counseling Line (CICL):
established by the AMC Cancer Research Center, this toll free information line provides: Up-to-date medical information, emotional support through short-term counseling and resource referrals. Contact them Mon.-Fri. 8:30am-5pm MST:1(800)525-3777. Visit them on the web: www.cicl.amc.org or email cicl@amc.org.

Candlelighter's Childhood Cancer Foundation:
provides resources and information for families facing cancer. Many publications and helpful referrals. Call 1-800-366-2223 or visit www.candlelighter's.org.

The Sarcoma Alliance:
is a volunteer organization of sarcoma survivors, their families, friends, and supporters. We work to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support. We also work to provide resources for the sarcoma patient's family and support network. Our services are free of charge. The links to their children and youth pages are: Children and Youth

CarePages:
A nationally available service for childhood cancer families. Create your own website and allow friends and family the ability to post messages of support and love in a non-intrusive way. Updates and pictures may be added to the site as often as you choose. Find them at: www.carepages.com

Childhood Brain Tumor Foundation:
website: www.cbts.org, (212) 448-9494 (NY)

Childhood Leukemia Foundation:
Childhood Leukemia Foundation provides free services to children with cancer, including wigs and hats for hair loss, gift baskets for children in cancer treatment centers, financial aid, educational items, Care 4 Kids Camps, gift cards and telephone calling cards. Childhood Leukemia Foundation has been providing free services to these very special children for over 11 years.
www.clf4kids.com.

Children's Oncology Camps of America (COCA):
Camps located throughout the US and Canada seek to provide children with special, fun, normalized childhood experiences. Call 1-800-737-2667 or check them out on the web at www.coca-intl.org.

Children's Organ Transplant Association:
1-800-366-2682, www.cota.org.

Dreamline Inc.:
Free travel for kids age17 and under in cancer treatment and recovery. Write: Bob Iverson, 117 North Merrill St., Park Ridge, IL 60068, call (847)910-3940 (IL) or visit- www.bobiverson.com/dreamline.

Give Kids The World:
call (407) 396-1114, or check out www.gktw.com to learn about their 51 acre resort for kids with a life threatening illness wishing to visit Walt Disney World in FL.

Grant-A-Wish:
kids and teens 18 years or younger may be eligible for wishes. Call 1-800-933-5470 or visit www.grant-a-wish.org.

I'm Too Young For This! Cancer Foundation:
A TIME Magazine Best 50 Website for 2007, the I'm Too Young For This! Cancer Foundation, i[2]y, is the nation's fastest growing advovacy, support and research organization working exclusively on behalf of survivors and care providers under the age of 40. ImTooYoungForThis.org

Leukemia & Lymphoma Society:
1-800-955-4572, www.leukemia-lymphoma.org. Provides many resources and local chapters nationwide.

Live Strong:
Lance Armstrong Foundation's resource for cancer survivors. www.liveStrong.org

Make-A-Wish Foundation:
1-800-722-9474, www.wish.org. Grants wishes to children under 18 facing life threatening illness.

Mesothelioma - Schools, like many other buildings built prior to 1978, often contain asbestos. Asbestos is known to cause asbestosis, lung cancer, and mesothelioma cancer. The Mesothelioma Center is an up-to-date resource for all mesothelioma (What is Mesothelioma?) issues ranging from mesothelioma disease to diagnosis options.

National Marrow Donor Program:
The NMDP Office of Patient Advocacy assists patients and physicians through the unrelated donor blood stem cell transplantation process by providing information, referrals, support, and advocacy. Visit them at www.marrow.org or call them at 1-888-999-6743.

SuperSibs!
Serves children ages 4-18 who have a brother or sister going through cancer treatments. Website: www.supersibs.org or call 1-866-444-SIBS (7427).

The National Children's Cancer Society
The National Children's Cancer Society is a nonprofit organization dedicated to improving the quality of life for children with cancer and their families worldwide. The N.C.C.S. serves as a financial, emotional, educational and medical resource for those in need at every stage of their illness and recovery. Contact the NCCS at: www.children-cancer.org

The Patient Resource Cancer Guide
is a free publication that was created to empower and prepare newly diagnosed and newly restaged cancer patients to become their own advocates. Click here to read more or request your free copy. www.PatientResource.net and www.patientresource.net/Childhood_Cancer.aspx

The Related Donor Cord Blood Program
offers families the opportunity to have the umbilical cord blood of a new baby collected and stored at no cost to them. The cord blood then may be used to treat an affected biological sibling who has a diagnosed disease, which can include leukemia, lymphoma, a sickle-cell disorder, an immune deficiency or a metabolic disease. The program is administered by the National Marrow Donor Program, and more information can be found at the Related Donor Cord Blood Program section of www.marrow.org/relatedcord. Families can discuss eligibility for the program or insurance questions with a Patient Service Coordinator at the NMDP Office of Patient Advocacy by email patientinfo@nmdp.org, or by calling 1 (888) 999-6743, Monday-Friday, 8 a.m. to 5 p.m. Central time.

(Note: please feel free to submit additional resources for possible inclusion in this section.)

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